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This 6-Year-Old Wants To Raise $1 Million For His Sick Friend

Here’s a heart-warming way to start your week.

Dylan Siegel is 6-years-old. His best friend, Jonah Pournazarian, has an incurable, rare liver disease called Glyogen Storage Disease Type 1B.

Jonah’s liver can store sugar but can’t release it, which means he can have dangerously low blood sugar levels that could lead to seizures or death. His immune system is also compromised, meaning something like the flu or a stomach bug could kill him.

When Dylan found out about Jonah’s illness, he decided he wanted to do something to help. His dad offered to have a bake sale or open a lemonade stand. “He’s like ‘Don’t patronize me. I want to do something big,” Dylan’s dad told ABC News.

“Something big” turned into a 16-page book Dylan wrote called “Chocolate Bar.”

The term “chocolate bar” is another way Dylan uses the word “awesome.” The book opens:

“I like to go to Disney Land. That is so Chocolate Bar.” He goes on to talk about aquariums and swimming another fun things, closing with “I like to help my friends. That is the biggest chocolate bar.”

His parents printed 200 copies of the book and raised $6,000 on the first day. After that, Dylan set a goal to raise $1 million to put toward a cure for his friend’s disease.

Media across the country started picking up on Dylan and Jonah’s story and sales of the book have been going nuts. Their story aired on ABC News last week, and Dylan has currently raised more than $600,000 thanks to his book.

Dr. David Weinstein studies and treats patients with the disease at the University of Florida, and he’s been shocked by how much money Dylan has raised. Weinstein told ABC News, “He’s raised more money for this disease than all the medical foundations and all the grants combined. Ever.”

How chocolate bar is that?

My wife works in the medical field and we fully support the power of medicine to heal. I’ve ordered a book, and I would encourage you to as well. Let’s help cure Jonah and eradicate this disease.

You can buy the book and find out more information about the disease at Dylan’s website, Chocolate Bar Book. Also, check them out on Facebook.

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13 Comments Post a comment
  1. Viviane Vincent #

    sympa votre blog,bonne continuation

    Like

    March 3, 2014
  2. Reblogged this on Forget the Viagra, Pass Me a Carrot and commented:
    What a fantastic story – we can all learn a great deal from this young man.

    Like

    March 3, 2014
  3. Reblogged this on PrimaryNews and commented:
    For those who have complained my blogposts are all a bit negative. Here is an uplifting one…not strictly sticking to my topic but it is a primary school aged child.
    This is the type of thing we need to encourage in our children…no test can give this kind of empathy and kindness. Lovely story…now where do I buy this book?

    Like

    March 3, 2014
  4. diaryofasouthafricangirl #

    This is amazing. I am going to order a copy of the book too. Thanks for sharing 🙂

    Like

    March 3, 2014
  5. Reblogged this on Notas de la sobriedad.

    Like

    March 3, 2014
  6. gloriamidwife #

    Reblogged this on Life After Death: A Young Widow's Tales of Surviving Suicide and commented:
    Children are amazing.

    Like

    March 3, 2014
  7. Reblogged this on popcorn and tea.

    Like

    March 4, 2014
  8. EddieB #

    Awesome sauce!!

    Like

    March 4, 2014
  9. This is fantastic! Thank you so much for sharing! I am reposting on my blog and on Facebook : ]

    Like

    March 4, 2014
    • Cool. Please do.

      Like

      March 5, 2014
      • I just wanted to let you know that I’ve relinked to your blog on today’s post as part of posting about my week in review. I hope this is ok, and if it isn’t, let me know and I’ll remove it. Hope you’re having a good weekend!

        Like

        March 9, 2014
  10. Reblogged this on Happy as a Bluebird and commented:
    Day 11: Kids, Chocolate, Books and Helping Others

    While I don’t remember a specific lesson from my parents, my sister and I picked up on helping others when you can. Maybe it was something in our water or because our parents read to us constantly – try finding a children’s book that doesn’t deal with helping others. Either way, this idea is a wonderful thing to give to a kid. It implies not only that they’re capable of helping solve a problem, it gives them agency in a way that is rarely granted to small children.

    In the spirit of kids doing their best to help others, I came across this blog post yesterday and I’m sharing it with you guys. Please share with your own friends and family and have a good Wednesday! I’ll be back tomorrow with a longer post.

    Like

    March 5, 2014

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  1. This 6-Year-Old Wants To Raise $1 Million For His Sick Friend | Mott the Hoople

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